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Privacy Policy

Helen O'Keefe – Developmental Nurse Specialist

Produced in accordance with the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018.

Introduction

This Privacy Policy explains how Helen O'Keefe – Developmental Nurse Specialist ("I", "me", or "my") collects, uses, stores and protects your personal information when you use my website, contact me, enquire about my services, or receive developmental support.

 

I am committed to protecting your privacy and handling your personal information in accordance with the UK General Data Protection Regulation (UK GDPR), the Data Protection Act 2018, and all applicable professional standards relating to confidentiality.

 

If you have any questions about this Privacy Notice, please contact me using the details below.

 

Email: helenokeefenurse@gmail.com

Who I Am

Helen O'Keefe – Developmental Nurse Specialist provides independent, neuro-affirmative developmental support for children, young people and their families.

 

Services include:

 

  • Developmental consultations

  • Home visits

  • Nursery and school observations

  • Telephone and video consultations

  • Individual Healthcare Plans (IHPs)

  • Practical developmental strategies

  • Written reports and recommendations

  • Pre- and post-diagnostic support

 

Data Controller: Helen O'Keefe

 

ICO Registration Number: 00014641851

How to Contact Me

Email: helenokeefenurse@gmail.com

How I Collect Information

Information may be collected directly from you, your child, or—with your consent—from professionals involved in your child's care.

 

I collect information through:

 

  • Website enquiry forms

  • Email

  • Telephone calls

  • Video consultations

  • Face-to-face appointments

  • Home visits

  • Nursery and school observations

  • Written questionnaires

  • Reports provided by parents or professionals

What Information I Collect, Use and Why

I collect personal information necessary to provide safe and effective developmental support.

 

This may include:

 

  • Parent or carer names

  • Child or young person's name

  • Date of birth

  • Home address

  • Telephone numbers

  • Email addresses

  • Emergency contact details

  • Medical history

  • Developmental history

  • Neurodevelopmental information

  • Educational information

  • Behavioural observations

  • Communication and sensory information

  • Information regarding routines, sleep, feeding and play

  • Assessment findings

  • Reports from other professionals

  • Appointment records

  • Consultation notes

  • Written reports and recommendations

  • Payment and invoicing information

Special Category Data

As part of providing professional developmental support, I process sensitive personal information relating to health.

 

This includes:

 

  • Medical information

  • Developmental history

  • Health conditions

  • Diagnostic information

  • Therapy history

  • Educational needs

  • Safeguarding information where applicable

 

This information receives additional protection under UK GDPR.

Why I Use Your Information

I use your information to:

 

  • Deliver developmental nursing services

  • Assess developmental needs

  • Produce written reports and recommendations

  • Communicate with families

  • Arrange appointments

  • Liaise with professionals where consent has been given

  • Maintain accurate clinical records

  • Meet my legal and professional obligations

  • Process payments and invoices

  • Respond to enquiries

Lawful Bases and Data Protection Rights

Under UK data protection law, I must have a lawful basis for collecting and processing your personal information.

 

Depending on the service provided, my lawful bases include:

 

  • Consent

  • Performance of a contract

  • Legitimate interests

  • Compliance with legal obligations

 

Where health information is processed, I also rely on the relevant conditions under Article 9 of the UK GDPR for processing special category data.

Your Data Protection Rights

You have the right to:

 

  • Access the personal information I hold about you.

  • Request correction of inaccurate or incomplete information.

  • Request deletion of your personal information where applicable.

  • Request restriction of processing.

  • Object to the processing of your personal information.

  • Request a copy of your information in a portable format.

  • Withdraw consent where consent is the lawful basis for processing.

 

I aim to respond to all requests within one calendar month.

 

Requests can be made using the contact details provided above.

Where I Get Personal Information From

Most information is provided directly by parents or carers.

 

With your consent, I may also receive information from:

 

  • Your child

  • General Practitioners (GPs)

  • Paediatricians

  • Health Visitors

  • NHS professionals

  • Occupational Therapists

  • Speech and Language Therapists

  • Physiotherapists

  • Schools

  • Nurseries

  • Educational Psychologists

  • Local Authority services

  • Other professionals involved in your child's care

Children's Privacy

My services are provided to children and young people with the consent of a parent or legal guardian.

 

I do not knowingly collect personal information from children without appropriate parental responsibility or lawful authority.

How Long I Keep Information

I retain records only for as long as necessary to fulfil legal, professional and insurance requirements.

 

Types of Records

 

Records held by me include (but are not limited to):

 

  • Clinical Records: Observation notes, reports, correspondence, consent forms.

  • Administrative Records: Appointment logs, invoices, referral information, communications.

  • Complaint Records: Details of complaints, investigations, outcomes, and learning actions.

 

Retention Periods

 

Records will be retained for the following minimum periods in line with professional and legal standards:

 

  • Online enquiry forms – 6 months after submission

  • Child client records – Until 25th birthday (or 26th if aged 17 at last contact)

  • Financial and billing records – 6 years

  • Complaint records – 10 years

  • Consent forms – Duration of service + 7 years

 

Records are securely destroyed once retention periods have expired.

Who I Share Information With

I will only share your information where necessary and appropriate.

 

With your consent, information may be shared with:

 

  • General Practitioners (GPs)

  • Paediatricians

  • NHS professionals

  • Schools

  • Nurseries

  • Therapists

  • Educational professionals

  • Local Authorities

  • Other professionals directly involved in your child's care

 

I may also disclose information where required by law or safeguarding responsibilities.

Duty of Confidentiality

I have a professional duty to keep your information confidential.

 

Information will only be shared where:

 

  • You have given consent.

  • There is a safeguarding concern.

  • There is a risk of serious harm.

  • Disclosure is required by law.

  • Disclosure is required by a professional or regulatory obligation.

 

Where appropriate, I will discuss this with you before sharing information unless doing so would place someone at risk.

Security

I take appropriate technical and organisational measures to protect your personal information.

 

Information is stored securely using password-protected systems and secure storage methods.

 

Access to personal information is limited to those who require it for the delivery of services.

 

Although every reasonable effort is made to protect your information, no electronic system can ever be guaranteed to be completely secure.

Reports and Professional Documents

Written reports, observations and recommendations are produced solely for the purpose of supporting your child and family.

 

Reports remain the intellectual property of Helen O'Keefe and must not be altered, reproduced or distributed without written permission.

 

Parents and carers may share reports with schools, healthcare professionals or other organisations at their discretion.

Communication

I may contact you by:

 

  • Telephone

  • Email

  • Text message and/or Whatsapp

  • Video consultation platforms

 

These methods are used for appointments, administration, follow-up support and agreed communications.

 

Extended support provided outside scheduled appointments may incur additional charges in accordance with my Terms and Conditions.

How to Complain

If you have any concerns about how I use your personal information, please contact me in the first instance using the contact details provided above.

 

If you remain dissatisfied after I have responded, you have the right to complain to the Information Commissioner's Office (ICO).

 

Information Commissioner's Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

 

Helpline: 0303 123 1113

 

Website: https://www.ico.org.uk/make-a-complaint

Last Updated: July 2026

This Privacy Policy may be reviewed and updated from time to time to reflect changes in legislation, professional guidance or my services. The latest version will always be available upon request or via my website.

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